Bloom Syndrome:
Bloom's Syndrome Foundation
www.bloomssyndrome.org
Canavan Disease:
Canavan Foundation
www.canavanfoundation.org
Canavan Research Foundation
www.canavan.org
Canavan Research Illinois
www.canavandisease.org
Jacob's Cure
www.jacobscure.org
Cystic Fibrosis:
Cystic Fibrosis Foundation
www.cff.org
Familial Dysautonimoa:
Dysautonomia Foundation
www.familialdysautonomia.org
Familial Dsyautonomia Hope Foundation
www.fdhope.org
Fanconi Anemia:
Fanconi Anemia Research Fund
www.fanconi.org
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Gaucher Disease:
National Gaucher Foundation
www.gaucherdisease.org
Glycogen Storage Disease:
Association for Glycogen Storage Disease
www.agsdus.org
Children's Fund for Glycogen Storage
Disease Research
www.curegsd.org
Maple Syrup Urine Disease:
MSUD Research Foundation
www.msudresearchfoundation.org
Mucolipidosis IV:
ML4 Foundation
www.ml4.org
Niemann-Pick Disease:
National Niemann-Pick Disease Foundation
www.nnpdf.org
Tay-Sachs Disease:
National Tay-Sachs & Allied Disease Association
www.ntsad.org
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